Bien que la plupart des références citées dans la bibliographie aient été écrites dans le contexte du VIH, elles contiennent des renseignements utiles, transférables aux personnes qui vivent avec d’autres invalidités épisodiques.
Risques
Vous ou un membre de votre famille êtes stigmatisé
- Audet, C.M., McGowan, C.C., Wallston, K.A., Kipp, A.M. (2013). Relationship between HIV stigma and self-isolation among people Llving with HIV in Tennessee. PLoS ONE 8(8), e69564. doi:10.1371/journal.pone.0069564
- Beaulieu, M., Otis, J., Blais, M., Godin, G., Cox, J.J, Côté, J., … & Zunzunegui, M.V. (2012). A model of quality of life of women living with HIV. Journal of HIV/AIDS & Social Services, 11(3), 210-232. DOI: 10.1080/15381501.2012.703559
- Brown, J.L., Vanable, P.A., Naughton, J.D., & Carey, M.P. (2015). Identifying HIV-infected women’s psychosocial stressors: Findings from a qualitative study, Journal of HIV/AIDS & Social Services, 14(2), 188-205, DOI:10.1080/15381501.2013.806235
Vous êtes congédié
- Audet, C.M., McGowan, C.C., Wallston, K.A., Kipp, A.M. (2013). Relationship between HIV stigma and self-isolation among people Llving with HIV in Tennessee. PLoS ONE 8(8), e69564. doi:10.1371/journal.pone.0069564
- Brown, J.L., Vanable, P.A., Naughton, J.D., & Carey, M.P. (2015). Identifying HIV-infected women’s psychosocial stressors: Findings from a qualitative study, Journal of HIV/AIDS & Social Services, 14(2), 188-205, DOI:10.1080/15381501.2013.806235
- Degroote, S., Vogelaers, D., Koeck, R., Borms, R., De Meulemeester, L., & Vandijck, D. (2014). HIV disclosure in the workplace. Acta Clinica Belgica, 69(3), 191–193. https://doi.org/10.1179/2295333714Y.0000000013
Vous ou un membre de votre famille êtes victime de violence
- Wielding, S., & Scott, A. (2017). What women want: social characteristics, gender-based violence and social support preferences in a cohort of women living with HIV. International Journal of STD & AIDS, 28(5), 486–490. https://doi.org/10.1177/0956462416654046
- Adeoye-Agboola, D., Evans, H., Hewson, D., & Pappas, Y. (2016). Factors influencing HIV disclosure among people living with HIV/AIDS in Nigeria: a systematic review using narrative synthesis and meta-analysis. Public Health, 136, 13–28. https://doi.org/10.1016/j.puhe.2016.02.021
Vous laissez d’autres personnes qui pourraient être plus vulnérables à la stigmatisation se débrouiller seules : rien ne change.
- DeVries, D.H., Koppen, L., Lopez, A.M., & Foppen, R. (2016). The vicious cycle of stigma and disclosure in “self-management”: A study among the Dutch HIV population. AIDS Education and Prevention, 28(6), 485-498
- Wagener, M., Opstal, S., Miedema, H., Brandjes, D., Dahmen, R., Gorp, E., & Roelofs, P. (2014). Employment-Related Concerns of HIV-Positive People in the Netherlands: Input for a Multidisciplinary Guideline. Journal of Occupational Rehabilitation, 24(4), 790–797. https://doi.org/10.1007/s10926-014-9510-0
Vous risquez d’être bien aimé et respecté, et sous le regard du public
- Poindexter, C., Henrickson, M., Fouché, C., Brown, D., & Scott, K. (2013). “They don’t even greet you”: HIV stigma and diagnosis disclosure experienced by HIV-positive African immigrants and refugees in New Zealand. Journal of HIV/AIDS & Social Services, 12(1), 99–120. https://doi.org/10.1080/15381501.2013.765715
- Pride, L. (2013). To tell or not to tell: Negotiating disclosure for people living with HIV on antiretroviral treatment in a South African setting. SAHARA-J: Journal of Social Aspects of HIV/AIDS, 10(S1), 17–27. https://doi.org/10.1080/02664763.2012.755320
Prestations
Recevoir des prestations d’invalidité bien nécessaires
- Poindexter, C., & Shippy, R. (2010). HIV diagnosis disclosure: Stigma management and stigma resistance. Journal of Gerontological Social Work, 53(4), 366–381. https://doi.org/10.1080/01634371003715841
Accroître la sensibilisation au VIH en milieu de travail
- Degroote, S., Vogelaers, D., Koeck, R., Borms, R., De Meulemeester, L., & Vandijck, D. (2014). HIV disclosure in the workplace. Acta Clinica Belgica, 69(3), 191–193. https://doi.org/10.1179/2295333714Y.0000000013
Soutenir d’autres personnes qui ont divulgué leur état dans votre collectivité
- Poindexter, C., & Shippy, R. (2010). HIV diagnosis disclosure: Stigma management and stigma resistance. Journal of Gerontological Social Work, 53(4), 366–381. https://doi.org/10.1080/01634371003715841
Promouvoir l’éducation et de meilleurs soutiens pour l’avenir
- DeVries, D.H., Koppen, L., Lopez, A.M., & Foppen, R. (2016). The vicious cycle of stigma and disclosure in “self-management”: A study among the Dutch HIV population. AIDS Education and Prevention, 28(6), 485-498
- Poindexter, C., Henrickson, M., Fouché, C., Brown, D., & Scott, K. (2013). “They don’t even greet you”: HIV stigma and diagnosis disclosure experienced by HIV-positive African immigrants and refugees in New Zealand. Journal of HIV/AIDS & Social Services, 12(1), 99–120. https://doi.org/10.1080/15381501.2013.765715
- Poindexter, C., & Shippy, R. (2010). HIV diagnosis disclosure: Stigma management and stigma resistance. Journal of Gerontological Social Work, 53(4), 366–381. https://doi.org/10.1080/01634371003715841