The Workplace Disclosure Decision Guide for People Living with Episodic Disability was developed to support people to make decisions about whether or not to disclose their health status in the workplace. The goal was to provide information about issues to consider, risks, benefits, and potential options. The guide can be used by an individual or with the help of a supportive person.
The Workplace Disclosure Decision Guide was originally written as a guide for people living with HIV. Some people living with HIV experience episodic disabilities, and people living with other episodic disabilities have also found it helpful in their decision-making process about workplace disclosure. This Episodic Disabilities version was adapted at Realize and continues to list many of the same resources and references as the original. Although many of them were developed in the context of HIV, they have useful information that is transferable. We have highlighted resources tailored specifically for people living with episodic disabilities in general.
The original Decision Guide was developed through a multiphase team led by Gayle Restall, Ph.D., from the Department of Occupational Therapy at the University of Manitoba. During the first phase, we conducted an environmental scan and an online survey to identify current practices, perspectives and experiences supporting people living with HIV to make workplace disclosure decisions.
The results of the survey have been published (see: https://content.iospress.com/articles/work/wor193035)
Next, we conducted a community consultation using deliberative dialogue and integrated knowledge translation approaches to better understand workplace disclosure needs and the best options for format and distribution of the Decision Guide. We engaged 40 participants including people living with HIV, service providers, representatives from advocacy organizations and representatives from employment groups to identify the important design features of the Decision Guide.
During the third phase of the project, we used the information gathered from the first two phases to develop a prototype of the Decision Guide. We interviewed 14 people (people living with HIV, service providers and employment experts) to gather their feedback about the guide and inform final changes.
We are grateful to all members of the research teams at various stages of the project and to all the people who contributed their ideas and feedback about workplace disclosure throughout the project. Gayle Restall, Kerstin Roger and Francis Diaz from the University of Manitoba and Patrick Faucher from the George & Fay Yee Centre for Healthcare Innovation brought the various pieces together to create and refine the prototype. Tammy Yates and Melissa Egan from Realize have been instrumental in finding a home for the Decision Guide through the Realize website.
Attribution-NonCommercial-ShareAlike CC BY-NC-SA
Restall, G., Roger, K., & Diaz, F. (2020). Workplace disclosure decision guide for people living with HIV. University of Manitoba.
This Decision Guide has been made available with the permission of the authors. The Decision Guide may have been modified from its original version. The information provided in this Decision Guide is meant to provide helpful information. There are no guarantees of completeness or accuracy. This Decision Guide is provided without warranty of any kind.
Melissa Egan, National Lead, Episodic Disabilities, Realize; firstname.lastname@example.org
Gayle Restall, O.T. Reg. (MB), Ph.D.; University of Manitoba; email@example.com